Tips For Parents – Children Recently Diagnosed With Type 1 Diabetes.

If you’ve just found this page chances are, you are a parent of a child who has recently been diagnosed with Type 1 Diabetes and you’re looking for advice. Sorry you have to be here but hopefully we can help. Here are some top tips to help you to navigate those first tricky weeks.

The first few weeks following a diagnosis of Type 1 Diabetes are tough, you will experience a wide range of emotions and everyone deals with it differently, there is no right or wrong way. You have a huge learning curve ahead and you may feel like you are living in some awful kind of bubble.

Here are some tips that I wish I’d had given to me when my son was first diagnosed in 2014. Continue reading

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New Dexcom CGM Prices For The UK

Exciting news for those in the UK that are using the Dexcom CGMS, or those who are considering purchasing a constant glucose monitoring system, on Friday 13th May, Dexcom announced that from Monday 15th May 2016 they would be supplying customers directly in the UK and they also announced new Dexcom CGM prices for the UK. The good news is both the Dexcom G4 and Dexcom G5 are now much cheaper to buy and run. Here we reveal the brand new costs. Continue reading

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New DLA Guidelines For Children With Type 1 Diabetes

Today is a victorious day for the Type 1 community. The DWP have finally published the New DLA Guidelines for Children With Type 1 Diabetes. Wondering what this means for you and your child? Let me explain.

Children with Type 1 Diabetes are entitled to DLA (Disability Living Allowance) but the awards can be very inconsistent. Many parents have been left disappointed after being told their child was not elibible, particularly after the age of 12. It’s important to know that DLA is not means tested, so it doesn’t matter if you work or not, or how much you earn.

Parents have been busy lobbying MP’s to look at the guidelines that the DWP give to their staff that helps them to decide if a child should be entitled to DLA. On the back of this Diabetes UK, Neil Sykes from Families with Diabetes National Network and Dr Fiona Campbell, Clinical Lead for the National Children and Young People’s Diabetes Network have been working with the DWP to update their guidelines. Previous guidelines really didn’t represent the reality of a child living with Type 1 Diabetes.

Today the new guidelines have been revealed…..and yes they are much better. Well done to all involved and a massive thank you too.

So what is different I hear you ask? Continue reading

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Type 1 Diabetes & Alcohol

Type 1 Diabetes & Alcohol are not a good cocktail…they don’t mix well. Worse than that they can be a downright dangerous, lethal cocktail. The purpose of this post is not to preach, but to prepare parents of what to expect when alcohol becomes part of their teenagers life and to give some tips on drinking Alcohol more safely for people with Type 1 Diabetes. Continue reading

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What Is A Good HBA1C For Children?

What is a good HBA1C for children with Type 1 Diabetes? You might be suprised by my answer, bare with me on this one, I’ve had an epiphany! Let’s get the facts out of the way first, NICE Guidelines have recently changed, reducing the target HBA1C from 7.5% (58) to 6.5% (48). Currently less than 20% of children in the UK are achieving the the old target, so it seems on the surface to be an extreme measure and many parents of children with Type 1 Diabetes worry the new target will make them feel like a failure.

Personally I embrace the new target. Why? Studies have shown that an HBA1C of 6.5% presents the least risk of future complications to our children, when also taking into account risks from Hypos. I read this before the guidelines were changed, a couple of years ago, shortly after my son’s diagnosis. Since reading that, it seemed natural for me to aim for it. To date some of the time we’ve hit it and most of the time haven’t been to far from it. Put it this way, if someone asked you to choose your HBA1C….you’d choose the 6.5% over the 7.5% right? Also research shows that if you have excellent control in the first years following diagnosis, this acts as some kind of protection in later life, even if during the teenage years control goes out the window. That is a huge motivator to me. If I take the burden now whilst he’s young enough to let me, I can make a real difference to his risk of complications later in life. Continue reading

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The Sugar Tax & Type 1 Diabetes

So yesterday it was announced by George Osborne that the government were introducing a new Sugar Tax, a subject that has been hotly debated by the Type 1 Diabetes community.

Many people feel that children with Type 1 Diabetes who require fast acting sugar during a hypo are being penalized.

The idea behind the Sugar Tax is to reduce childhood obesity, which is a huge issue in the UK right now. Obesity is linked to a higher risk of adults developing Type 2 Diabetes.

It’s taken some time for me to decide where I stand on this issue, but I think I’ve now decided. Continue reading

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Omnipod & Dexcom Artificial Pancreas

Exciting news for users of the the Omnipod Insulin Pump and Dexcom CGM System. It looks like a Tubeless Artifical Pancreas may be on the horizon. Insulet the manufacturers of the Omnipod Tubeless Insulin Pump have just announced a partnership and licence agreement with Mode AGC (Automated Glucose Control LLC)  to develop an advanced artificial pancreas algorithm. The system will use the tubeless Omnipod pump and latest Dexcom technology. Continue reading

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An Open Letter To The BBC & Eastenders

Dear, Script Writers, Producers, BBC Management and all those involved in last nights episode of Eastenders.

I was shocked and saddened by the joke Kim made in last nights episode about Children With Diabetes.

Putting aside for just one moment the fact that it was factually incorrect, let us first try to establish what it is about Children with diabetes that you find so amusing.

Take a good long hard look at this image, of a child lying in Intensive Care after a diagnosis of Type 1 Diabetes. (By the way this is the type that well over 90% of children have in the UK). Unfortunately 25% of children are not diagnosed until the condition becomes life threatening despite it being simple to test for. In fact each year children are dying due to a late diagnosis. Is this what you find so funny? Continue reading

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Type 1 Diabetes and the Paleolithic Ketogenic Diet

In the media today it has been reported that a 9 year old child with Type 1 Diabetes has been taken off Insulin after following the Paleolithic ketogenic diet.

This to me is irresponsible reporting at best and downright dangerous at it’s worst. The Paleolithic Ketogenic Diet is not a cure for Type 1 Diabetes. Please do not be tempted to take your child off Insulin whilst following this diet without Expert Medical Advice. Continue reading

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Omnipod Insulin Pump Review 2016

We have been using the Omnipod Insulin Pump now for 2 years. It’s time to write a review to help those considering the Omnipod for their child. Choosing the right pump can feel like you’re navigating a minefield, all pumps do the same job, but different insulin pumps offer different features. Hopefully our review of the Omnipod will answer many questions you have, if not feel free to leave any questions in our comments section. Here we will run through what we believe are the features and benefits of the Omnipod, and describe the reality of using this insulin pump. Continue reading

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